Baby Food Soon!

I’ve been working on this post for a while, and it’s just become a random one full of stuff that I want to revisit eventually. lol So I apologize if it feels random…’cause it is!

Mostly I’ve been focused on pumping…I’ve been working hard to keep up my supply and I am proud to say that after 2 weeks back at work, I haven’t completely lost it! We added domperidone to my vitamins and it has kept me stable. I used to make 32oz a day. When I cut out my night time pumping I went down to 29oz. When I went back to work I tanked…averaging about 20oz a day, but it was gradually dropping every day. I added the domperidone a week ago Monday, cut down to 7 pumping sessions a day and have gotten back up to 20-21oz a day. I will take it! As long as it isn’t dropping…

All that to say, I think Eli eats more than that, so it’s likely that we will have to begin supplementing soon. I’m ok with it as long as it’s just a bottle or two. We definietly don’t want to add any foods to his diet until 6 months. It was always my goal to pump that long and I’m almost there! 🙂 Let’s see what happens! In just 2 months we will be able to introduce some new foods, which I am very excited about so that will help. But in just two months he will be eating way more too! According to, he will peek at 6 months or so with his milk intake. This momma just can’t do any more than she is doing. (Milk intake by month.)
I bought some baby oatmeal yesterday while grocery shopping and I’m going to start collecting food reciepes. Hello Pinterest! 😉 Eli is already sitting very well in his high chair 🙂 hehe

Now on to the randomness…
*What NOT to say about a special needs child
* Where were you when I was pregnant?!:Chic Cheap Nursery
*Resources: Down Syndrome Options
*WANT!Tripp Trapp

See? Random…

The Legend of Little Eli

Crafting project over the weekend
Crafting project over the weekend
We had a wonderful weekend despite finding out that our AC is broken. EDIT: our entire outside unit needs to be replaced. Really? Worst. Timing. Ever…
lol The weather is so wonderfully beautiful- I hope it stays that way for next week’s spring break. 🙂
We worked in the yard and visited with friends all weekend. Plus we had our maternity photoshoot- I can’t wait to see those pictures!

This morning at school I was presented with the book: The Legend of the Indian Paintbrush. Lots of things make me cry these days, but the beginning of the book really touched me.
I thought this was a great way to begin my week. Hope you enjoy!

“Many years aho when the People traveled the Plains and lived in a circle of teepees, there was a boy who was smaller than the rest of the children in the tribe. No matter how hard he tried, he couldn’t keep up with the other boys who were always riding, running, shooting their bows, and wrestling to prove their strength.
Sometimes his mother and father worried for him.
But the boy, who was called Eli, was not without a gift of his own. The wise shaman of the tribe understood that Eli had a gift that was special. ‘Do not struggle, Little Eli. Your path will not be the same as the others. They will grow up to be warriors. Your place among the People will be remembered for a different reason.'”

So true…

Pediatrician Questions and updates

I was going to update sooner, but I came home to a swollen ankle! Yeah…just one ankle. LOL I’ve never had that before! When I get swollen, my hands and feet normally feel warm and tingly and they are puffy to the touch. But this was different. My right ankle and toes were like little sausages! My skin felt the same as always but everything looked huge. So I put my feet up (after a foot massage) and drank lots of water. The swelling went down almost immediately but it still freaked me out. Yay pregnancy! haha

Anyway, we visited our first pediatrician yesterday- it’s getting real!!
I still have a lot to do, but this was a neat thing to start checking into. I have a few more appointments over spring break, so I think after that we will easily be able to pick someone.

This doctor- Dr. L, was very good. He is associated with Texas Children’s and made us feel very comfortable. The only down side is that he is a bit of a drive for us, and the hospital he has rights at I don’t like. 😛

Questions that I felt were important to ask:

Important Growth Information for Children with Ds <—Give this to your pediatrician!

-Office Hours? Weekend hours?
-Sick and well waiting areas?
-How many years have you been in practice?
-What are your specialties?
-What age range of children do you treat?
-What OB do you work with?
-Visiting the hospital at birth? Recommendations for pediatrician that does?
-What hospitals do you have rights at?
-Discuss your philosophy on child-rearing, breastfeeding, circumcision, vaccines, natural healing…
-Length of appointments?
-How often would you want to see our son in the first year? Why?
-How comforfotable are you with working with children who have Down syndrome?
-As a pediatrician, what are your biggest concerns about children's health?
-What kind of experience fo you have referring children with speech delays, fine or gross motor delays, sensory-processing concerns, and cognitive delays to professionals?
-What kind of help or support do you offer to children that have behavioral problems?
-Do you work with lactation consultants?
-How many children do you have that have Down Syndrome and how recently have you worked with them?
-Do I see a nurse/PA or a combination? Chances of seeing doctor during emergency?
-When should I call you?
-In what other ways are you avaliable for contacting should I have an emergency or health concerns after hours? Email?
-How can I ask a quick question during business hours without coming in?
-What is your take on referrals to specialists (and Down syndrome clinics?)
-Lab work done in-house?
-Recommended Labs for babies with Ds?
-How does your office handle payment arrangements?

It's kind of a long list but I always have lots of questions, so better safe than sorry! I felt I got to ask everything I wanted and that he answered very well!
On Thursday I went to the local Ds meeting to give this connecting thing one more time. I've connected quite nicely with many other parents through Facebook, word-or-mouth and online forums. That has been a HUGE blessing. But I wanted more local connections. People in my area that had little ones. I struck gold!! 19 families showed up- 3 with little new babies! 2 of them live near me! 🙂
I was also added to 2 new Facebook forums and made some vital connections there. 2 new ladies who have little ones that live in my subdivision. What the what?! I know!!
So I am hoping to pick their brains about pediatricians, PT and ECI. Happy momma!

Hmm…what else is going on? I got my baby shower list all taken care of and got a sneak peak at the invitations and shower gifts. It's going to be super cute!
I am hoping some time this month we can paint Eli's room and order the hutch that goes on top of the dresser. Try to get a few things in order and get that room in a more presentable state.
Speaking of his room, and stuff that he needs, our neighbor is getting rid of some baby stuff and has an owl pack-and-play she no longer needs! So we are going to go over there today and pick it up.
My hope is that we have an easy weekend, that i can get some essentials done around the house and just relax. We have been super busy the last few weeks and frankly I am ready to slow down.

That being said, I want to thank everyone for continuing to put up with me. I feel like someone who has split personalities. One day I am happy, the next I am sad and scared. Not only am I so incredibly blessed to even be pregnant (I was beginning to think it would never happen for us), but I was reminded the other day just how fragile life really is. A good friend of mine is 36 weeks pregnant with her little miracle baby. At a routine ultrasound, the doctors discovered that her son was not thriving as he sound and preformed a non-stress test. He did not pass. After several attempts and tests, she was rushed to Houston where she tested again and finally passed. Long story short, the doctors in Houston performed an MRI on their unborn son and found severe brain bleeding and swelling of the brain. The outlook is grim. More details here
She has had an uneventful pregnancy and is weeks away from delivery. Her strength and faith in God’s healing power are truly inspiring. I literally cannot get this sweet family out of my head. I wake up thinking about them, I go to sleep thinking about them…they are on my heart. My point is, that nothing is promised to us. That I need to stop focusing on my fears and begin embracing these moments I have now. I have slowly allowed the devil to steal away my joy and pray on my fears. I am going to work harder at appreciating what we have and trying to enjoy my little man.

I’m running back to Your promises one more time, Lord that’s all I can hold on to, I gotta say this has taken me by surprise, but nothing surprises You. Before a heartache can ever touch my life, it has to go through Your hands, and even though I keep asking why, I keep asking why,

No matter what, I’m gonna love You, no matter what I’m gonna need You, I know You can find a way to keep me from the pain but if not, I’ll trust you, no matter what, no matter what.

Please keep this precious family in your prayers and continue to pray that I can find the strength I need to move forward and enjoy what I have been blessed with.