In a whirl of emotions, I’m trying to write out the information I just received. It’s not any one particular emotion and the over all feeling is that I have had a weight lifted- so this is a good post 🙂 I promise.
We have been waiting for this day for over 3 years…a step toward more information and understanding for our Ruby. Today, Ruby was officially diagnosed with ASD.
I know some of you aren’t surprised. If you’ve spent time around us (especially in the early years), you might have been subjected to the mess we were. And if you didn’t, then it’s probably because I cancelled plans with you because we were such a mess. From struggling to have play dates to just getting out in the yard so the other kids could play, every outting presented unique challenges and sensory upsets. But there is still a level of shock for many, including us. While ASD is a spectrum disorder, Ruby doesn’t follow a lot of the “rules”. Her history of sensory issues, emotional outbursts, and delayed social emotional abilities is what brought us to this moment. But on the outside, Ruby is very typical; she makes decent eye contact, has age-appropriate speech, plays with her toys, and can be very affectionate.
As it was explained to us, girls (specifically) like Ruby who are on the spectrum are not typically diagnosed until they are older, when they are beginning to have trouble developing more complex relationships and are presented with a higher demand for social interactions.
Understanding that ASD presents differently in everyone and that Ruby’s brain is wired differently brings so much peace for me at the moment. We have been given direction and we are entering a new chapter.
I’m not sure that listing all the reasons for her diagnosis or the specifics of her diagnosis does much, if not to validate it further. I’ve always known (even before she was born) that Ruby would come to us with her own unique Rubyness. I just knew. And part of me was afraid but today I just feel that it’s nice to finally know.
Do you know someone in your life that has ASD? Would it help you to know more about why we looked into testing and what specifically had us concerned when it came to Ruby’s development?