We had Ruby’s evaluation today. The short version is that she qualified for services with ECI.
One part of me is glad. She will get some professional help and it validates my observations.
The other part of me is so so sad. Sad that we are adding more therapies and appointments and people to our lives. Sad that she is considered delayed and disappointed that perhaps some of it could have been avoided. But you can’t control what happens to your child before they are in your home and I have to keep telling myself that.
So here’s the long version.
They came to observe her and ask questions. Ruby was her typical self so they got to see most all behaviors we called them out about.
Because she does not babble or have any “words” she was considered “fail” on her hearing screen. But girlfriend can hear just fine (if not, over sensitive to noise). She also screened for Velo-Cardio-Facial Syndrome (VCFS). It’s just a check list and she got 2 out of 7 identifying features (speech problems and extreme behavior/mood swings). I don’t believe she has this but it’s part of their required eval. Either way, I will address it with our pedi when we go for our next well check.
More on VCFS
The two main concerns were her feeding and sensory issues. Here is how she scored at 9mo old:
Social Emotional- 7.5mo
Self Help/Adaptive- 6mo
Gross/Fine Motor- 9mo/5mo
She’s a smart cookie but isn’t communication appropriately and her feeding is an issue. The two things I was worried about.
She will see an SST twice a month and get OT four times a month.
In 28 days we can have her evaluated for speech services, which I am sure she will also get.
ECI does not make an official diagnosis, they only defer to medical professionals. And if you have to ask me what I think, you would likely not smile at my answer.
Is your head spinning yet? Mine is.
If you could just pray for our sweet Ruby, our family and our dear Meagan who will be taking care of the kids while I am at work? I return to work on Monday and it’s a lot to process. I want the very best for her and I don’t want to be filled with worry about “what-if’s” for her. With Eli’s stuff and now Ruby, the day is very demanding and full of many needs.
Thank you for following along and loving our family! 🙂