My friends in my Down syndrome group (shout out, Rockin’ Moms!), have been talking about the ABLE Act. I don’t feel like I can say much that my friend over at Garden of My Heart hasn’t already said. It’s perfect. So go read it!
But basically, the ABLE Act will help give Eli and others like him, opportunities in life we take for granted.
Currently, when Eli turns 18, he will become elligible for SSI and Medicaid benefits. These will help to pay for his therapies and regular doctors visits. Unfortunately, the same benefits that are supposed to help him will ultimately limit him. He will not be allowed to have more than $2,000 to his name at any time.
Could you imagine for a moment what that would be like? Trying to get everything you need on only $2,000? Gaining meaningful employment? Getting paid for what you are worth?
To protect Eli, we can get a Special Needs Trust, but the start up cost is very expensive and the trust is restrictive. The ABLE Act will protect Eli’s financial future, give us peace of mind, and help him to be the most successful person he can be.
Would you consider signing the petition? Contact your local representatives? Spread the word. It means a lot. Thank you! 🙂