Yesterday we attempted his repeat ABR but were sent home because there was a discrepancy about the last time Eli was fed. Grumble grumble….
Today we tried again. It was a bit better but I still hate the process. Starving him and depriving him of sleep is so hard.
He woke up 30-45 min into the test but the audiologist got enough info to make a recommendation.
Basically he did better today than last time and responded better. In her opinion we cannot rule out permanent hearing loss yet, but the results indicate its much more likely his loss is due to small ear canals and fluid.
It also means he can certainly hear (although not clearly) and that decongestant is working. (He sounds much much better and less snotty) Praise God!
The flip side is they want him to hear as clearly and quickly as possible. So we fitted him for hearing aides.
Which means I cried.
I cried because I don’t want Eli to have something that makes him more different than he already is. Not to mention its a bit overwhelming to fit your child for hearing aids when you originally only came in for a hearing test.
But it’s more important for him to hear than my feelings about how aids look.
The audiologist thinks they will be temporary until he is big enough for tubes. Once he has them, they will repeat the ABR to check for improvement. Until then we just wait for those ears to get bigger and go from there.
She recommended some brightly colored aids but we went with something a bit less…neon…and noticeable.
The official report:
“Mild hearing loss bilaterally. The presence of bilateral middle disorder indicated a conductive component. A mixed hearing loss cannot be ruled out at this time. Ear mild expressions were taken and hearing aid selected. PT to return for hearing aid fitting in one month and follow up ABR in three. Also recommended continued medical management of middle ear disorder.”
Now we are just praying for the fluid to continue to drain, his ears to continue to grow and for an easy transition off the sedative.
We had his sleep study scheduled for the end of January, and if it shows any apnea, the way his ABR is performed will have to change. So continuing to pray for that. God is able and has worked so many healing miracles in Eli already!
What else is new? Eli is weight bearing very well through his legs, he’s reaching for people and things, he’s sitting better and better each day. He’s doing amazing honestly! We have one more session with our old OT and hopefully getting our new one by the first of the year. So sad to see her go but she will be able to help so many other kids at her new job. We know we will get another OT that’s perfect for Eli. 🙂
We started using hip helpers (he wears the tiniest size and they are adorable lol) to work on 4 point and Pre-crawling.
I guess that’s the update for now. Excited to celebrate Eli’s first thanksgiving- so much to be thankful for! Thanks for your continued prayers and for following along! Enjoy your holiday!