On the eve of our first buddy walk, Eli has a head cold. 😦
poor little guy! He woke up so stuffy that he couldn’t eat! His little eyes were puffy and swollen and goo-filled. I felt so bad for him so
I decided to stay home and nurse him and love on him in hopes he will feel better tomorrow. He’s not his happy self today 😦
Our OT stopped by with kinesio tape. We had discussed it before and I was excited to try it. I bet there are tons of YouTube videos on tape so I will have to scope it out.
She taped his back to help him with sitting and holding his head up more straight. The exciting thing is that he’s getting stronger every day and sitting for longer and longer every day. 🙂 so proud of him!
The bad news is that our OT has decided to resign and go into private therapy for the same reason many teachers do: too much paper work and not enough focus on the patient.
I nearly began to cry. She loves Eli and we love her. She works him and loves on him and we’ve made so much progress together.
She gave us some great advice on moving forward. But we are going to have to fight. I’m not sure how our services will pick up after our OT resigns- will they stay the same? Same number and same time? We were already told he wouldn’t get speech because he’s not delayed and PT isn’t needed at this time because he isn’t mobile yet.
Looks like I will need to put on my gloves and hop in the ring. I guess I will contact TCH after the first of the year about private services.
My child is worth it, he is smart, and he is going to continue to surprise the world!
It’s so frustrating that ECI limits what is possible. They don’t want to give services, they don’t want to push for your child and our therapist is a rare and wonderful advocate for Eli.
I’m sad to lose her and worried about the future but I know it will all work out in the end.
Eli is doing so well and we are so excited about the next 6 months.
Enjoying this stunning day and some TLC with my little man. I will definitely update after the walk tomorrow! Have an awesome weekend!