Just got off the phone with Eli’s ENT. Basically she confirmed what thought the audiologist suspected- the majority of the hearing loss is likely due to fluid.
It doesn’t help that he has low muscle tone so his ear drums are likely floppy. And they are tiny which could also block some sound.
It could also be *some* nerve damage just due to the fact that he has Down syndrome.
ABR’s are typically repeated to get a better idea of the whole picture. So it’s not terrible that he needs to repeat.
If he has nerve damage they will fit him for hearing aides until his ears are large enough for tubes.
She said she was surprised about the left ear being better since she thought the right ear looked physically better at his exam. Which is also a characteristic of fluid. She also said he’s babbling and very vocal- all good signs. She didn’t seem worried overall and said this was a very good plan of treatment.
So we will retest in 3 months and give him his decongestant before the test and see what those results are. If the results are similar it could indicate nerve damage but waiting 3 months won’t change much of anything at this stage.
It made me feel a bit better but I’m definitely anxious. I don’t want to add more to what makes him different and I want to help him so he can hear better.
All in all mild to moderate hearing loss isn’t the worst case scenario but it makes this mama bear puff up.
Please just pray that little man can start sprouting up and that his ears will open up, drain and grow.