Good and Bad News

Good news first:
-Eli slept in two 5 hour shifts last night woot!! Pumping doesn’t seem so bad when you aren’t sleep deprived…
-We have started cloth diapers :3
-I was able to finally get my rings on, yay for wedding rings!
-I got out of the house AND pumped on the go
-I’ve showered every day this week. Success in my book 🙂

Bad news:
I got out of the house because we had Eli’s follow up hearing screen…He originally passed his right ear at the hospital but did not pass in his left so they just wanted to follow up.
That didn’t go quite as I had hoped. It’s actually not the worst news in the world but it was discouraging. Eli failed his screen in BOTH ears.
Yeah.
Because he initially passed in his right and now he is failing the doctor believes he has fluid in his middle ear.
He ran another test that showed results typical of fluid build-up in the middle ear.
All that to say, we have to go back for another screening in 2 weeks and see the ENT. He mentioned tubes which made me uncomfortable mainly because I know it means surgery. But if it means he will hear better, not have fluid build up and have the chance to acquire language sooner then we are all for it.
It’s discouraging because I had hoped he would pass his screening with flying colors and we could close that chapter.

The positive in this is that we have caught it early and his testing is consistent with fluid build up- meaning he likely can hear just fine but it’s muffled. AND it can be fixed. AND we have witnessed him responding to sounds, which is encouraging.
{An entirely too-long video of Eli wiggling around…hehe}
Anyway, it felt very good to get out of the house today, even if it was just to sit in Houston traffic. It was empowering to be able to pump on the go. Not the easiest feat but manageable enough to attempt it again.
Tomorrow I am getting my hair cut because pre-pregnancy hair is scary and poofy and dry. lol And I will be working on getting his birth announcements put together.
Tonight it’s pizza and maybe a sip of red wine!

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7 Replies to “Good and Bad News”

  1. Ashley, if Eli has to have tubes in his ears, the surgery is less than 10 minutes seriously and our ENT said most of that is prep work for the procedure. Sarah had tubes twice. She was barely 7 months old the first time. Also, they don’t use general anesthesia for tubes. Because the surgery is so short, they just use gas which is alot less risky. Hope this helps.

    1. Thanks for commenting, girl! I didn’t know your little one had to have them too! I’m finding more and more people who have had them- sounds like they are pretty common.
      Who is your ENT? We are working with one in H but that’s so far to go!

      The fact they use gas is huge- that was one of my fears!

      1. Tubes are very, very common! Babies have very short eustachian tubes so when they get a cold, the eustachian tubes can become blocked resulting in fluid in the middle ear. The fluid can then become infected and if the tubes stay blocked due to allergies or colds, ear infections result. Doctors will recommend tubes so the fluid can drain and babies can hear. As you know, hearing in these early months is critical to language development.

        When Sarah had tubes put in the second time, she was about 18 months old and at that time, they removed her adenoids ( also a very common surgery for kids). Adenoidectomies are quick too (that surgery was about 20 minutes from the time they took her to the OR to the time the ENT came to talk to us). They do use general anesthesia for adenoidectomies though but not for ear tubes ( that’s just gas as mentioned above). We got comfortable with the second surgery because the ENT was very quick to point out that babies born with cleft lips and heart defects go through long surgeries at an earlier age than Sarah was by then and come out just fine.

        Now for ENT recommendations. Dr. Thomas Stark was Sarah’s ENT and did both her surgeries in 2007 and 2008 respectively. He was with Sadler Clinic back then, but I don’t know if he is still there since Sadler has lost so many doctors. I will never forget how he carried Sarah back to the OR himself when she was just 7 months old. He said he would treat her just like his own child and he did. Sarah did well with him until after the second set of tubes. She was continuing to get recurrent ear infections and we had her tested for allergies ( all negative and still negative after a recent retest 3 weeks ago). The problem was that the infected fluid was draining out of the tubes and outside her ear it was so bad. Dr. Stark would then have to suction her ears out which hurt. He proposed just taking the tubes out to see how she did, but that didn’t make sense to me so I went back to our pediatrician whom I loved, but who has since retired, and she referred us to Dr. Tiffany Raynor who is with Children’s ENT in the Texas Medical Center. They only see kids Ashley and I think they require a referral regardless of the type of medical insurance you have since they specialize in complicated cases. Sure enough, Dr. Raynor “cured” Sarah and we avoided a third surgery. We still see Dr. Raynor today; she is well worth the drive and she works Sarah in quickly when she is sick. Sarah loves Dr. Raynor and even asks to go see her when she’s not sick. One of Sarah’s other friends whose mom is an RN takes her daughter to this same practice. Sarah’s friend had an adenoidectomy, tonsillectomy, and sinus surgery at age 2. Children’s ENT is a great practice. I know you said you don’t like the drive into Houston but it is worth it if Eli starts to have recurrent ear issues. I’ve always thought about how lucky we are to be 50 minutes from one of the best medical centers in the world!

        If you want to start in The Woodlands though, Dr. Stark is very good if you can find him. If not, Dr. Rosalia Burke used to be Dr. Stark’s partner at Sadler and she is very good. She saw Sarah a few times when Dr. Stark was on vacation. She is located now on Pinecroft right across from Memorial Hermann in The Woodlands. All three ENTs I’ve mentioned spend alot of time with you. I don’t think you can go wrong with any of them. Let me know if you have other questions. I’m happy to answer them.

        -Charlotte

      2. Thank for the referrals- I actually already use Dr. Stark! He did my nasal surgery for my deviated septum in 2009 and I do all my allergy testing and treatment there 🙂

        I believe the place we visited this week was Children’s ENT but I can’t remember. Same drive and we both agree it’s worth it for his health. So I guess we will see what that doc suggested and go from there.

  2. Such a sweetie! Lovely to see him “in person” so to speak. Each day you are a little closer to getting back to your new normal! Keep up the good work!

  3. He is ADORABLE! Like the above person said – nice to ‘see him in person’. Love the video, he’s like “Mom, stop filming, you’re embarrassing me!” So cute!

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