Pediatrician Questions and updates

I was going to update sooner, but I came home to a swollen ankle! Yeah…just one ankle. LOL I’ve never had that before! When I get swollen, my hands and feet normally feel warm and tingly and they are puffy to the touch. But this was different. My right ankle and toes were like little sausages! My skin felt the same as always but everything looked huge. So I put my feet up (after a foot massage) and drank lots of water. The swelling went down almost immediately but it still freaked me out. Yay pregnancy! haha

Anyway, we visited our first pediatrician yesterday- it’s getting real!!
I still have a lot to do, but this was a neat thing to start checking into. I have a few more appointments over spring break, so I think after that we will easily be able to pick someone.

This doctor- Dr. L, was very good. He is associated with Texas Children’s and made us feel very comfortable. The only down side is that he is a bit of a drive for us, and the hospital he has rights at I don’t like. 😛

Questions that I felt were important to ask:

Important Growth Information for Children with Ds <—Give this to your pediatrician!

-Office Hours? Weekend hours?
-Sick and well waiting areas?
-How many years have you been in practice?
-What are your specialties?
-What age range of children do you treat?
-What OB do you work with?
-Visiting the hospital at birth? Recommendations for pediatrician that does?
-What hospitals do you have rights at?
-Discuss your philosophy on child-rearing, breastfeeding, circumcision, vaccines, natural healing…
-Length of appointments?
-How often would you want to see our son in the first year? Why?
-How comforfotable are you with working with children who have Down syndrome?
-As a pediatrician, what are your biggest concerns about children's health?
-What kind of experience fo you have referring children with speech delays, fine or gross motor delays, sensory-processing concerns, and cognitive delays to professionals?
-What kind of help or support do you offer to children that have behavioral problems?
-Do you work with lactation consultants?
-How many children do you have that have Down Syndrome and how recently have you worked with them?
-Do I see a nurse/PA or a combination? Chances of seeing doctor during emergency?
-When should I call you?
-In what other ways are you avaliable for contacting should I have an emergency or health concerns after hours? Email?
-How can I ask a quick question during business hours without coming in?
-What is your take on referrals to specialists (and Down syndrome clinics?)
-Lab work done in-house?
-Recommended Labs for babies with Ds?
-How does your office handle payment arrangements?

It's kind of a long list but I always have lots of questions, so better safe than sorry! I felt I got to ask everything I wanted and that he answered very well!
On Thursday I went to the local Ds meeting to give this connecting thing one more time. I've connected quite nicely with many other parents through Facebook, word-or-mouth and online forums. That has been a HUGE blessing. But I wanted more local connections. People in my area that had little ones. I struck gold!! 19 families showed up- 3 with little new babies! 2 of them live near me! 🙂
I was also added to 2 new Facebook forums and made some vital connections there. 2 new ladies who have little ones that live in my subdivision. What the what?! I know!!
So I am hoping to pick their brains about pediatricians, PT and ECI. Happy momma!

Hmm…what else is going on? I got my baby shower list all taken care of and got a sneak peak at the invitations and shower gifts. It's going to be super cute!
I am hoping some time this month we can paint Eli's room and order the hutch that goes on top of the dresser. Try to get a few things in order and get that room in a more presentable state.
Speaking of his room, and stuff that he needs, our neighbor is getting rid of some baby stuff and has an owl pack-and-play she no longer needs! So we are going to go over there today and pick it up.
My hope is that we have an easy weekend, that i can get some essentials done around the house and just relax. We have been super busy the last few weeks and frankly I am ready to slow down.

That being said, I want to thank everyone for continuing to put up with me. I feel like someone who has split personalities. One day I am happy, the next I am sad and scared. Not only am I so incredibly blessed to even be pregnant (I was beginning to think it would never happen for us), but I was reminded the other day just how fragile life really is. A good friend of mine is 36 weeks pregnant with her little miracle baby. At a routine ultrasound, the doctors discovered that her son was not thriving as he sound and preformed a non-stress test. He did not pass. After several attempts and tests, she was rushed to Houston where she tested again and finally passed. Long story short, the doctors in Houston performed an MRI on their unborn son and found severe brain bleeding and swelling of the brain. The outlook is grim. More details here
She has had an uneventful pregnancy and is weeks away from delivery. Her strength and faith in God’s healing power are truly inspiring. I literally cannot get this sweet family out of my head. I wake up thinking about them, I go to sleep thinking about them…they are on my heart. My point is, that nothing is promised to us. That I need to stop focusing on my fears and begin embracing these moments I have now. I have slowly allowed the devil to steal away my joy and pray on my fears. I am going to work harder at appreciating what we have and trying to enjoy my little man.

I’m running back to Your promises one more time, Lord that’s all I can hold on to, I gotta say this has taken me by surprise, but nothing surprises You. Before a heartache can ever touch my life, it has to go through Your hands, and even though I keep asking why, I keep asking why,

No matter what, I’m gonna love You, no matter what I’m gonna need You, I know You can find a way to keep me from the pain but if not, I’ll trust you, no matter what, no matter what.

Please keep this precious family in your prayers and continue to pray that I can find the strength I need to move forward and enjoy what I have been blessed with.


3 Replies to “Pediatrician Questions and updates”

  1. I am awfully sorry for your friend and praying for a miracle and healing powers for everyone, that’s tragic. No one should have to hear that news poor little guy.

    Ask parents how long they wait in the waiting room for the pediatrician, newborns have lots of appointments! Many doctors have times designated for newborns to keep germs down too (first thing in the morning or right before lunch I’ve seen). If you are always waiting a lot it will drive you bonkers.

    Amazing news on the connections, you will build the group up too! Newborns in your area are an extra great bonus– you live in a positive area I say. Yippee!!!

  2. Have you talked to your doctor about preeclampisa? I’m sure someone has already asked you but it causes quite a few issues, and I’m just looking out for you as a friend. 🙂

    Don’t let me forget to bring that stuff for Eli this weekend and that book!

    I’m definitely keeping your friend and her family in my thoughts. I cannot imagine going through something like that. You’re right about cherishing the moments we have now. We often take for granted what’s been given to us.

    1. I have and he doesn’t feel I am at risk right now. Everything looked good, so I will just look out for the signs. Thanks, my friend. I’m sure I will flood FB and your phone with questions later. lol

      I can’t wait for this weekend!! 🙂

      I know my friend would appreciate that you said that. She is so amazingly strong and I am encouraged by her strength and faith. She got a new update recently with a more hopeful prognosis, but it boils down to simply this: we just don’t know. It’s in God’s hands and no professional with any amount of degrees will be able to determine her son’s future. So it’s just a waiting game at this point.

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